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Living with Schizophrenia

Music soothes my schizoaffective disorder and I’ve been a fan of Tori Amos since I was in high school in the 1990s, before my first schizoaffective psychotic episode. Amos’ heyday was in the ‘90s, but she’s continued making music about controversial themes such as sexuality, suicide, and rape since then. Her fearlessness in what she sings about as she straddles her piano bench has comforted me since I first started listening to her and especially comforts my schizoaffective anxiety now that her music has gotten more mellow--although her lyrics still pack a punch.
In some families, it is normal to worry about developing schizoaffective disorder. When my uncle first got sick with schizophrenia and with bipolar disorder (which was then called manic depression) in the late 1950s, his little sister, my mother, was afraid she would get sick, too. She was 12 years younger than him. Similarly, when I got sick with schizoaffective disorder, bipolar type, my brother, Billy, only two-and-a-half years younger than me, was afraid he’d get sick. Here is my story of living with schizoaffective disorder and knowing it is an illness that other people are afraid to have.
My husband Tom and I have a cat. But he’s no ordinary cat. He’s an ageless cat modeled after the character Puss in Boots from the Shrek movies. Even though he’s not a living, breathing pet, he feels like part of the family.
I hate to be a Debbie Downer (and a schizoaffective one at that), but just because the weather is getting nicer doesn’t mean the new coronavirus has magically disappeared. We still need to wear masks as much as we are able when we exercise outside. I say “as much as we are able” because I know it’s hard to wear them while just walking or exercising outside. But let’s try while we still maintain social distancing.
The year 2020 is turning out to be very stressful, and stress isn’t good for any of us, whether or not we have a mental illness like schizoaffective disorder. Not only do we have the coronavirus to contend with, but it’s also a presidential election year. Future responses to the virus and the outcome of the election go hand in hand in my mind. Add in my schizoaffective disorder, and I’m really stressed out. But I’m focusing this article on the election despite that.
I’ve written recently that I was keeping fit, dieting and exercising, because of weight gain from the antipsychotic I take for my schizoaffective disorder. But that was before Illinois started to shelter-at-home due to COVID-19. Well, believe it or not, despite the pandemic and the self-quarantine, I’m still at it.
It was just your common cold--a slight sore throat, a slight cough, sniffles and no fever. I wouldn’t have paid it any mind if the coronavirus weren’t running rampant. My schizoaffective anxiety didn’t help the situation either, though, honestly, everyone was freaking out.
I am turning 41 years old this April. Getting older is hard for everyone, but it’s especially hard when you have a chronic illness such as schizoaffective disorder. Here’s why.
COVID-19, or coronavirus, is definitely taking a toll on my schizoaffective anxiety. I haven’t heard voices because of the stress (thankfully), but this is a case where I can’t tell myself I’m worrying about nothing, because everyone else in the world is freaking out about the same thing I am.
March 11 is a very important landmark date for me. This year, it marks the eighth anniversary of being smoke-free with schizoaffective disorder. Winning the battle to become smoke-free is no small feat, especially when you have a mental disorder. Here’s how I’m celebrating--as well as some insights I’ve gained over the years since I became smoke-free.