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Mental Illness and Media

Latest from Perez Hilton, the National Enquirer and other gossip (oh, excuse me, entertainment news) sites: "Is Amanda Bynes Schizophrenic?" Ignoring for the moment how much we hate that term "schizophrenic", let's get to the heart of the reported issue. Amanda is not doing well, and her parents are worried. How well I know the feeling.
"Are you taking your meds, sweetie?" asks Hannah's Dad, juggling the cell phone as he shops in the hardware store. "Of course I'm taking my meds!"shouts Hannah, as she compulsively counts to 8 in every imaginable way (Hannah has OCD), hides from life under her comforter, and tries to cope with the pain she has inflicted upon herself with a Q-Tip. (Hard to explain. Gotta see the show.) Of course, Hannah is clearly not taking her meds.
A Cause of Sandy Hook School Shooting? The obituaries in my local paper still contain too many heartbreaking attempts to sum up the life of a six-year-old. My friends continue to tearfully share personal connections to the heartbroken families in Newtown, where less than one week ago lives were tragically ended - and countless more changed - forever. As we continue to cry out: Why? how?  And how we prevent this from happening again? The voices of reason speak out: Better Gun Control. Fewer violent video games. A shift in media coverage to stop sensationalizing violence. More enforcement of mandated treatment for those who need it. And - a cause we have felt personally ever since Ben's diagnosis of schizophrenia - more help and services for those with mental health issues, and for their families. Who will listen? Who will act? We must. All of us. Pick a cause and advocate. Fight back. Speak out. Insist upon change. And don't let these issues fade.
I write this just a few hours after having spoken at a legislative breakfast in Connecticut, where looming budget cuts seem aimed at "saving money" by cutting funding to non-profit agencies that provide needed services to people who have disabilities or disadvantages ranging from poverty to down's syndrome to mental illness...people who, with these services, have a chance to rebuild their dignity, their potential, their futures. Without these services? The costs are astronomical - financially as well as emotionally. Homelessness, hopelessness, aimlessness, illness relapse, even crime. And here we are, moments later, hearing the news that another shooting has occured - this time in our own backyard, in Newtown  CT. A shooter has opened fire in an elementary school. An elementary school. Does this have anything to do with untreated mental illness? I have no idea, yet - but it is one of the first things that comes to my mind.
I not only dream for a world someday without stigma and with proper treatment for mental illness - I also hope for it. And, for that to happen, we need each other. Reflecting the theme of the recent NAMI Mercer (New Jersey) annual Harvest of Hope conference, we must work together to plant, nurture, and harvest the seeds of hope. Another "Tragic Drama" re Schizophrenia? On day three of Mental Illness Awareness Week, this news from the film world: another movie is being planned that will focus on a true story of someone diagnosed with schizophrenia - and, of course, the tragic results. Because, I suppose, that is way more interesting to the viewing public than a person with treated schizophrenia, who has the courage, patience, and strength to pull his or life back together after a devastating diagnosis and numerous crises.
This is Ben's journey, too. That's what I sometimes need to remind myself. Mental Illness and Stigma Sure, I have become the family spokesperson for our experience with mental illness, since writing a book and this blog about our journey "from chaos to hope" with schizophrenia. Still, when people ask me to come and speak, either in person or in the media, about the issues associated with our situation, they sometimes ask if Ben will come and speak too. The answer is: No. Not yet, anyway. And I can only hope that Ben's decision is not only respected, but understood.
Answer: a lot. At least, given the opportunity, respect and resources, we can learn. So can anyone who loves someone with a mental illness. Last week I had what I thought was a terrific idea: why not get a parent's perspective on the recent tragedy in Aurora, the public perception of schizophrenia, and the value of treatment for mental illness?  After all, family members live the experience of seeing a loved one's decline into mental illness, and (if we are informed, supported, and -let's face it - a little bit lucky) the benefits of proper treatment. Schizophrenia expert? Not just an M.D.
Last night we finally sat down to watch the first episode of Perception,a new television series on TNT starring Eric McCormack as Dr. Daniel Pierce, a professor of neuroscience with a brilliant mind – and schizophrenia. Because of this mental illness, he sees things in a different light, evidently extremely useful for solving crimes. How I could wish that my son Ben's hallucinations were so helpful. But this is reality. Perception vs. Reality I tried to watch the pilot episode with as open a mind as possible. After all it is just a TV show, and it is nice to see someone with schizophrenia be the hero for a change.  Still, I wonder about misconceptions being perceived as reality by those who know woefully little about schizophrenia as it is - including Ben himself.
We know what happened, but not why.  We mourn the victims, hug our loved ones to us, and will think twice before walking into a movie theatre for awhile. The Batman massacre in Aurora, Colorado. Unspeakable violence. Haunting pictures of a grieving father, a critically injured mother who cannot yet be told that her 6-year-old child is one of the victims - and a young, academically-gifted young man now sporting fire-engine-red hair and a (let's just say it) really creepy smile. And again, the questions: How could this have happened? What could have led up to this horrible, terrifying, unspeakable act? And - as we ask each time this happens - Could it have been prevented? Why did no one see the signs? And, for me, the gratitude that my own son's mental illness is diagnosed, treated, and no longer defines all of his actions. 
I just returned from a trip to Phoenix, Arizona, where for three days I've been on a whirlwind tour of interviews, meetings, and one community lecture, courtesy of Arizona Foundation for Behavioral Health (AFBH) and ASU's Center for Applied Behavioral Health Policy - all to tell our family story to those who will, we hope, be affected by it in some way.