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My son, Ben, who lives with paranoid schizophrenia, is in the process of rebuilding his life. After years of feeling buried under symptoms, distracted by hospitalizations, rejected from opportunities, and feeling left behind by friends whose lives had followed more predictable paths unfettered by mental illness, he is also (dare I say it? Yes!) reclaiming his future. So far, so good. Living with Mental Illness. Steps toward Recovering Life. Reclaiming his future. How delicious. How marvelously hopeful. And it's a phrase I heard echoed this week at a breakfast briefing of the International Center for Clubhouse Development (ICCD) in New York City. I love this phrase, because it's not only full of hope, it is full of truth - for those who manage to find their way to a Clubhouse, embrace its community, and take advantage of its opportunities.
Christie Stewart
When you've got an urge to self-injure, it's good to have an alternative list of healthy coping mechanisms to use. This helps you avoid physically harming yourself when dealing with dfficult emotions. In this video blog, I discuss several healthy alternatives to self-injury behavior, and talk about some common controversial methods and whether I think they work or don't work to stop self-injuring.
There are a lot of things I don’t believe in. Religion. Ghosts. Tarot card readers. Tea leaves. Homeopathy. Taylor Swift. And so on. We all can make a list like this. We all have things we believe in and things that we don’t. But one thing we all have in common is that we’re all looking for ways to get through the pain of mental illness, bipolar disorder. And some people find religion, ghosts, tarot card readers, tea leaves, homeopathy or Taylor Swift comforting. And I think it’s important we don’t disavow or judge something just because we don’t believe in it.
When you live your entire life with mental illness your relationship with the particular nemesis tormenting you goes through a long, evolutionary arc. What do I mean by this? Let’s find out. At first there is the glorious warm bath known as victim-hood, in which we indulge as long as possible until at last the water turns cold, grimy and inhospitable. At that moment we must look directly into the pitiless, unflinching eyes of reality’s rubber ducky. We fantasize about having ourselves dry-cleaned. Our lament of how unfair this all is must finally be returned to our children, where it belongs. Fairness, as we have told them so many times, is not of this world. Stuff happens. Deal with it as best you can but please, no whining.
Do you remember vinyl records? When they had a scratch, the needle would stick in the groove and the same line would sing over and over and over until you moved the needle off the crack. Sometimes we can feel like we have that “broken record” in our heads, repeating negative thought patterns, negative self-talk, doubts, worries. Sometimes it is the voices from our past who told us we would never be good enough, or didn’t try hard enough and now even though that person isn’t here, the voice plays on and on and on.
I remember being a little girl--my hair was curly and my mother put pink ribbons in it. Apparently, I was pretty cute, but I'm certain it's a mothers blessing to honestly believe they have the best looking little ones. That aside, I remember a life in which I was not afraid of the future. I was excited! I had lots and lots of plans, some of them secret and some of them I told everyone I could. When I grew up I wanted to be a doctor and an actress and as pretty as the babysitter who occasionally took care of my siblings and I. I was not afraid of the future; I was still young and pure as only children are. I had not yet been diagnosed with a chronic mental illness.
Addiction is both a societal as well as an individual problem. We have tried to tackle this issue for eons but have not discovered the true root cause of addiction.
We all want to achieve our goals, but the fear of failure can prevent you from getting what you want. When we decide we want to make a change, set a goal, or try something new, we get excited and energized, but often these feelings deflate when the daunting task of taking action sets in. Our self-confidence is often the first thing to fade, and without that, it's hard to achieve our goals. But I've got just the thing to conquer your fear of failure and achieve your goals.
In 1981 a lazy doctor almost killed me. Who knows, maybe he was having a busy day, maybe he was hungry and just trying to get to lunch. Maybe he thought he knew so much about run-of-the-mill infections that he didn’t need to know so much about the unique disposition of individual patients. Whatever the reason, when I needed an antibiotic he failed to read my chart before prescribing a medication that my chart clearly noted as a possible danger. What followed was a nightmare that lasted for over 25 years.
Last night I woke at 2:45 AM from a nightmare drenched in a cold sweat. In the dream, I was trapped at home with my kids, while something strange was going on outside. We had to hide, lest we be shot at through the windows. The worse part was we weren't quite sure what was happening, so we did not know what to do to stop it. All of my nightmares are similar to this one.  I am in the middle of a war zone, hiding-- knowing that at any minute, I will be found by the enemy.

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Paula
I have a lifetime of trauma and BPD and depression & anxiety and i can really identify with everything you have said chronic low self esteem and believing i nothing worthwhile to contribute to any conversations in social situations, iv grown up believing i was a bad evil person who doesn’t deserve anything good that life has to offer, even when im with my family i again feel like im an outsider and all the above caused me to isolate for 16 years and this made my situation a million times worse when i came back into society only months ago, im absolutely filled with Paranoia and i dont feel safe around humans unless im with 2 people that i can sort of connect with but its not often this happens and on any given day im that terrible or feel unable to have a conversation with people i can retreat to isolation again which again makes me worse everytime, i feel like i suffer if im out with people and i suffer if i isolate, im just constantly in a state of anxiety and terror and it paralyzes me and makes me brain shut down where i cant even think of a sentence to strike up a conversation with people, it’s absolutely horrendous and all the negative things my head tells me about myself it’s disturbing! I wouldn’t talk to anyone else the way i talk to myself but i just dont know how to stop it its been so ingrained in me for at least 4 decades now and im 45 years old.. i keep hoping one day it will get easier, but my heads such a mess, honestly and im not a bad person, iv just had a lifetime of trauma since i was a little girl that it completely changed me, that I don’t even recognise myself and neither does my family or anyone who knew me, but i might have more serious mental health iv just never been able to get out the house to go to mental health assessments.. but i wish you all luck!
Anonymous
Hi I'm 15 and I have severe anger issues that I can't control. I don't know why I am like this but when I am super mad I like to punch myself in the head repeatedly until I pass out and I sometimes slam my head against the wall. I used to cut but I try not to. I would just take scissors and you know, snip snip. I think this started when I was younger- around 12 years old. I always thought about sh but now I actually do it. I wish I had never started because once you start you can't go back. It's like a one-way road. There is no way you are going back to where you started.
anon
I do not have a BPD diagnosis (or think I should), but I can relate to much of what you're saying. I had a parent who was bipolar and struggled with addiction and who ultimately died when I was in my twenties. My other parent was extremely religious and I was raised in a controlling and punitive environment. I am extremely codependent on my intimate partners but can simultaneously hold others at a distance when I feel overstimulated or just want to be alone. I too am very triggered by perceived abandonment and really struggle to communicate with others because I feel too much too intensely and cannot make others understand it..I don't always understand it. Despite all of this, I feel very triggered by this post?? I have a friend who also struggles in the same ways I do, but I suspect it is much worse for them. I notice they ALWAYS have plans even when they feel burned out because they are terrified of being alone. We used to be very codependent on one another but now I find myself keeping my distance. And sometimes for unrelated reasons, I have to cancel plans. OR I will state upfront that I tentatively agree to the plans but reserve the right to cancel if I don't feel up to it. I don't know if that makes me a bad friend or not; I have been in counseling for years learning how to hold space for both myself and others. And sometimes that looks like cancelling or rescheduling. I know that this is a trigger for my friend- they not so casually mention other "flaky" friends in conversation- but at what point am I supposed to cater to someone else's (sometimes irrational) needs at the expense of my own peace? Why do I have to give you a play by play of my thought process (and maybe a doctor's note) to get out of doing something? What's an acceptable reason to cancel? This friend recently encourages me to just say I don't want to do something (almost aggressively mind you), but when I do, I feel like I get the silent treatment or otherwise passive aggressive responses. And I am constantly hearing stories about this person's disappointment in other friends who cancel or are perceived as flaky. I want to give them space to process their feelings about cancelled plans, but sometimes I feel annoyed and overlooked. Like their pain is more valid or important than my own. I have not had the courage to talk to my friend about this but feel I need to soon or else I will continue to harbor resentment. Anyway, I know there's room for all of us to feel our feelings but it's so hard to navigate right now. I have been a caretaker in one form or another my entire life. I really need to take care of myself and not feel guilty about it. The end!
Mj. Bean
You're definitely not alone. My boyfriend has DID and more often times than not, we dont get throiugh the day without arguing or disagreeing at least once. I'm head over heels in love with "Super Max" which is who he basically is when he reaches this sort of "peak performance" and the "lesser" maxs' are the ones that can get downright insane. One talks like an 8 year old, another one acts like he's around 20 years old. I didn't have any idea he had this until we were 3 months in and i had already fallen hard for him. Most days he's in "annoyed/angry max mode" where he is literally the biggest control freak on the planet. Obsesses over silly things like "spilling" things and such. It can be exhausting but the violent max is the one that, while i rarely see him, he's still the only one i dread and have only seen a handful of times.

My point being, I'm right there with you. I hate the rollercoaster. I just want to live life without being in a state of constant fight or flight mode, only for his character to change and de-escalate and I fall for the person I fell for all over again.
Exhausting is a horrible word. The understatement of all understatements, if you will.

I wish there were better support groups for this kind of mental health condition.
midnightvibes
I’m so sorry that you’re going through this. It sounds so difficult and I can’t imagine what it must feel like. I know what it’s like to feel like no one in the world cares, that they’re all just caught up in their lives, and I’m so sorry that you’re feeling that way. I would just say stay strong and seek the help you deserve. You deserve to be alive in this world. Even if it feels like you don’t, you 100% do. I don’t know you but I can tell from this post it’s seems like you are resilient and care about others and have some hopes for the future. Stay strong friend, seek help if you are able to, and have hope if you can. I believe in you so much <3